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Cardiofaciocutaneous syndrome × CNS × 1 year × Clear all

NCT05361811 2026-02-19

Acceptance and Commitment Therapy for Caregivers of Children With a RASopathy: An Internal Pilot Feasibility Study and Follow-up Randomized Controlled Trial

Cardiofaciocutaneous syndrome, Legius syndrome, Neurofibromatosis 1, Noonan Syndrome, Genetic Diseases, Inborn, Costello Syndrome

NCT04395495 2025-12-18

RASopathy Biorepository

Recruiting

1,000 enrolled

CNSDermatologic

Cardiofaciocutaneous syndrome, Neurofibromatosis-Noonan syndrome, Legius syndrome, Neurofibromatosis 1, Noonan Syndrome, LEOPARD Syndrome, Costello Syndrome