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NCT05676099 2026-05-29

TSC Biosample Repository and Natural History Database

Tuberous Sclerosis, Lymphangioleiomyomatosis

NCT01552434 2026-05-15

Bevacizumab and Temsirolimus Alone or in Combination With Valproic Acid or Cetuximab in Treating Patients With Advanced or Metastatic Malignancy or Other Benign Disease

Phase 1 Terminated

BreastCNSGenitourinaryHead & NeckLymphoidMyeloidSarcoma

Breast Neoplasms, Carcinoma, Transitional Cell, Endocrine Gland Neoplasms, Castleman Disease, Mouth Neoplasms, Neoplasm Metastasis, Neoplasms, Pharyngeal Neoplasms, Recurrence, Sarcoma, Soft Tissue Neoplasms, Thyroid Neoplasms, Urologic Neoplasms, Neurofibromatosis 2, Lymphangioleiomyomatosis, Neoplasms, Mesothelial, Erdheim-Chester Disease

NCT06160310 2026-01-23

Tuberous Sclerosis Complex and Lymphangioleiomyomatosis Pregnancy Registry (TSC-LAM Registry)

Tuberous Sclerosis, Lymphangioleiomyomatosis

NCT05467397 2026-01-21

Feasibility of [11C]Acetate-PET in LAM and TSC

Phase 1/2 Active not recruiting

7 enrolled 6 charts

Tuberous Sclerosis, Lymphangioleiomyomatosis

NCT06889168 2026-01-21

LAMP-2

Phase 1 Recruiting

Lymphangioleiomyomatosis

NCT07304856 2025-12-26

Role of Extracellular Vesicles as Biomarkers of Pulmonary Involvement in Patients With Lymphangioleiomyomatosis and Tuberous Sclerosis Complex

Lymphangioleiomyomatosis

NCT01484236 2025-03-13

RE-LAM-CE

Lymphangioleiomyomatosis

NCT02432560 2024-12-24

MIDAS

Lymphangioleiomyomatosis

NCT03150914 2024-12-24

MILED

Phase 3 Active not recruiting

Lymphangioleiomyomatosis

NCT05727852 2024-07-30

Breath Analysis and Arterial Stiffness in Patients With Respiratory Diseases

Enrolling by invitation

Alveolitis, Extrinsic Allergic, Asthma, Cardiovascular Diseases, Cystic Fibrosis, Lung Diseases, Interstitial, Lymphangioleiomyomatosis, Pulmonary Disease, Chronic Obstructive

NCT06405997 2024-05-09

The Genotype and Phenotype of Lymphangioleiomyomatosis

Lymphangioleiomyomatosis

NCT01353209 2024-04-17

TRAIL

Phase 2 Completed

17 enrolled 13 charts

Lymphangioleiomyomatosis

NCT00414648 2023-11-02

MILES

Phase 3 Completed

89 enrolled 15 charts

Lymphangioleiomyomatosis

NCT05323370 2023-03-29

LAM-CAK

Tuberous Sclerosis, Lymphangioleiomyomatosis

NCT03253913 2023-02-01

RESULT

Phase 2 Completed

25 enrolled 11 charts

Lymphangioleiomyomatosis

NCT05617105 2022-11-15

PEComesCells

Lymphangioleiomyomatosis, Angiomyolipoma, Perivascular Epithelioid Cell Neoplasms

NCT03062943 2022-09-28

LAM

Phase 2 Completed

Lymphangioleiomyomatosis

NCT02325505 2022-08-04

Characterization of Patients With Tuberous Sclerosis Complex, Lymphangioleiomyomatosis and Angiomyolipoma

Tuberous Sclerosis, Lymphangioleiomyomatosis, Angiomyolipoma

NCT05190627 2022-01-27

LORALAM

Phase 2 Unknown

Lymphangioleiomyomatosis

NCT02484664 2022-01-20

COLA

Phase 2 Completed

12 enrolled 11 charts

Lymphangioleiomyomatosis

NCT05087134 2021-10-21

Characterizing LAM With 11C-Choline PET/CT

Phase EARLY_PHASE1 Unknown

Lymphangioleiomyomatosis

NCT03193892 2021-09-24

A National Registry on Chinese Patients With Lymphangioleiomyomatosis

Lymphangioleiomyomatosis

NCT04388371 2021-08-11

Glutamine PET Imaging in LAM

Phase 1 Completed

Lymphangioleiomyomatosis

NCT04577937 2021-03-18

Sleep Patterns in Patients Affected by Lymphangioleiomiomatosis

Phase NA Unknown

Sleep Apnea Syndromes, Sleep Wake Disorders, Lymphangioleiomyomatosis

NCT02061397 2020-08-25

SOS

Phase 1/2 Completed

10 enrolled 6 charts

Tuberous Sclerosis, Lymphangioleiomyomatosis

NCT03131999 2020-06-16

LAMP-1

Phase 1/2 Completed

18 enrolled 7 charts

Lymphangioleiomyomatosis

NCT04184193 2020-01-21

Benefits of Pulmonary Rehabilitation in Patients With Severe Lymphangioleiomyomatosis (LAM)

Lymphangioleiomyomatosis

NCT01687179 2018-10-11

SAIL

Phase 1 Completed

14 enrolled 14 charts

Lymphangioleiomyomatosis

NCT02859194 2018-07-18

The Effect of Lt to Rt Shunt Using Veno-veno-arterial Extracorporeal Membrane Oxygenation (ECMO) on Coronary Oxygenation in Lung Transplantation Patients

Phase NA Completed

Bronchiectasis, Lymphangioleiomyomatosis, Pulmonary Disease, Chronic Obstructive, Acute Lung Injury, Familial Primary Pulmonary Hypertension

NCT02116712 2016-11-30

The Tolerability of Saracatinib in Subjects With Lymphangioleiomyomatosis (LAM) (SLAM-1)

Phase 1 Completed

Lymphangioleiomyomatosis

NCT02009241 2015-12-11

Pulmonary Rehabilitation in Lymphangioleiomyomatosis

Phase NA Completed

Motor Activity, Lymphangioleiomyomatosis

NCT00989742 2015-12-02

Doxycycline In Lymphangioleiomyomatosis (LAM)

Phase 4 Completed

Tuberous Sclerosis, Lymphangioleiomyomatosis

NCT00457964 2013-09-25

RAD001 Therapy of Angiomyolipomata in Patients With TS Complex and Sporadic LAM

Phase 1/2 Completed

Hereditary Sensory and Autonomic Neuropathies, Tuberous Sclerosis, Lymphangioleiomyomatosis

NCT00960895 2011-10-27

LAM-PH

Hypertension, Pulmonary, Lymphangioleiomyomatosis

NCT00490789 2008-04-30

TESSTAL

Phase 2 Unknown

Tuberous Sclerosis, Lymphangioleiomyomatosis

NCT00457808 2007-04-09

Rapamycin Therapy for Patients With Tuberous Sclerosis Complex and Sporadic LAM

Phase 2 Completed

Tuberous Sclerosis, Lymphangioleiomyomatosis