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Development and Validation of Patient Reported Outcome (PRO) Measures for Individuals With Neurofibromatosis 1 (NF1) and Plexiform Neurofibromas (pNFs)
National Institutes of Health Clinical Center (CC)
Recruiting
Clinical Trials
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Real-World Treatment Study of Koselugo (Selumetinib)
AstraZeneca
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NCT06515860 2026-01-09
NF1-TED
Boston Children's Hospital
Recruiting
NCT06222203 2025-09-26
Surveillance for Malignant Transformation of Neurofibromatosis Type 1 (NF1) Related Peripheral Nerve Sheath Tumors (PNST)
National Institutes of Health Clinical Center (CC)
Recruiting
NCT06379230 2024-04-23
A Retrospective Study on Epidemiological Characteristics of Chinese NF1 Patients in Real World (PROMISE)
Shanghai Ninth People's Hospital Affiliated to Shanghai Jiao Tong University
Recruiting