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NCT00111384 2026-04-15

Study of Disease Severity in Adults With Neurofibromatosis Type 1 (NF1)

Legius syndrome, Neurofibroma, Neurofibromatosis 1

NCT00314119 2026-04-14

Natural History and Biology of Skin Neurofibromas in Neurofibromatosis Type 1

Neurofibroma, Neurofibromatosis 1, Neurofibromatoses

NCT06880991 2026-04-09

Development of Patient-Reported Outcome Measures Assessing Tumor Visibility and Appearance Concerns in Neurofibromatosis Type 1: A Qualitative Study

Neurofibroma, Neurofibromatosis 1

NCT02544022 2026-04-07

Development and Validation of Patient Reported Outcome (PRO) Measures for Individuals With Neurofibromatosis 1 (NF1) and Plexiform Neurofibromas (pNFs)

Neurofibromatosis 1, Neurofibroma, Plexiform

NCT00924196 2026-03-20

Natural History Study of Patients With Neurofibromatosis Type I

Active not recruiting

Neurofibroma, Neurofibromatosis 1, Neurofibroma, Plexiform, Neurofibrosarcoma, Optic Nerve Glioma

NCT06222203 2025-09-26

Surveillance for Malignant Transformation of Neurofibromatosis Type 1 (NF1) Related Peripheral Nerve Sheath Tumors (PNST)

Neurofibroma, Neurofibromatosis 1, Nerve Sheath Neoplasms, Neurofibroma, Plexiform, Neurofibrosarcoma

NCT04774289 2024-09-19

Incidence of Malignant Peripheral Nerve Sheath Tumor (MPNST) Development in Participants With Neurofibromatosis Type 1 (NF1) Receiving and Not Receiving Medical Therapies Directed at Plexiform Neurofibromas (PN)

Neurofibromatosis 1, Peripheral Nervous System Neoplasms

NCT01445314 2024-08-16

Analysis of Data Collected From Individuals Administered Neurobehavioral Assessments

Behavior, Brain Neoplasms, Neurofibromatosis 1

NCT04879160 2024-03-22

Systematically Assessing Changes in Plexiform Neurofibroma Related Disfigurement From Photographs of Subjects With Neurofibromatosis Type 1 on a Phase 2 Clinical Trial

Neurofibromatosis 1

NCT00026780 2020-10-08

Eligibility Screening for a NCI Pediatric Oncology Branch Research Study

CNSLymphoidOther hematologic neoplasmSarcoma

Neoplasms, Neuroblastoma, Neurofibromatosis 1, Sarcoma, Ewing, Osteosarcoma, Precursor Cell Lymphoblastic Leukemia-Lymphoma

NCT00684398 2019-12-16

Adaptation and Quality of Life Among Adults With Neurofibromatosis Type I

Neurofibromatosis 1

NCT02153931 2019-01-31

Internet Support Group for Parents of a Child With Neurofibromatosis Type 1

Anxiety Disorders, Depression, Neurofibromatosis 1